Every single one of our featured charities have been tied to a personal friend or family and this one is no different.
The McManus Family are dear friends of ours… Katy High School Alumni with Jamie and Micah but even deeper; Brandi and Jamie are childhood friends and former teammates.
When we launched our company, it was a no brainer that we wanted to help Logan and her family raise awareness and money to find a cure for this devastating disease - they were one of the first friends that came to mind.
Meet The McManus Family
Meet Richard, Brandi, Tucker and Logan - sweet sweet Logan. Logan has a rare genetic disease that there is no cure for called Sanfilippo Syndrome. It is the McManus Family goal to bring awareness to this disorder and more importantly, raise money to find a cure.
Imagine Alzheimer’s, But In Children.
In a nutshell, that’s what every family of children with Sanfilippo Syndrome faces. Mucopolysaccharidosis type III (MPS III), also known as Sanfilippo syndrome is a rare genetic condition that causes fatal brain damage. It is a type of childhood dementia and most patients never reach adulthood. (source: Cure Sanfilippo Foundation)
"Our daughter, Logan, has a smile that no one can resist. She loves watching her favorite TV shows and being with her family.
In 2016, Logan was diagnosed with Sanfilippo syndrome, a neurodegenerative disease that is like Alzheimer's in children. She will lose all the skills she has gained in her short life, suffer seizures and movement disorders, and eventually die in her teens.
Currently, there is no FDA-approved treatment or cure for Sanfilippo Syndrome. But there is hope. Scientists are conducting more research than ever. Your support enables that life-saving research to continue until a cure is discovered." -Brandi McManus
How You Can Help
Prayers. Prayers are the number one thing we can all do and it costs nothing. Pray for healing, pray for a cure, pray for Logan to have restful and pain-free days. Pray for her brother and parents to continue to see the joy in every day-especially the tough ones. Pray for the other families who face this challenge.
With every purchase made, The Southern Spirit will donate 5% of proceeds to the Cure Sanfilippo Foundation. You can shop online or in our Katy location within Painted Tree Boutiques, located at Grand Parkway and S. Fry Road next to HEB.
More About Sanfilippo Syndrome
You can read what causes Sanfilippo, symptoms and more here.
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